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Help Us Reach Our Goal of $100,000 for Rett Syndrome Research

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Every dollar brings us closer to life-changing research and resources for families impacted by Rett Syndrome — but we can’t do it without you.

 

Our Goal:

$100,000

 

Raised So Far:

Less than $20,000

That means we still have a long way to go, and we need your help. Whether you give $20 or $2,000, your donation moves us closer to hope, healing, and breakthroughs for children like Jailynn.

 

Will you join us?

Together, we can close the gap and make a difference.

DONATE FOR IMPACT!

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Jailynn Amani is an inspiration to many, having persevered through life's obstacles while living with Rett Syndrome. Her family's foundation, the Jailynn Amani Foundation, provides support, awareness, and research to the community and other families with Rett. We are excited to continue raising funds and awareness while honoring Jailynn's strength and resilience.

The Facts About Rett Syndrome

1 in 10,000 children are born with Rett Syndrome every two hours.

October is designated as Rett Syndrome Awareness month.

About

MORE ABOUT
RETT SYNDROME

Rett Syndrome is a rare genetic disorder that affects brain development in girls. It is caused by a mutation in the MECP2 gene, which is responsible for producing a protein that regulates the expression of other genes. Symptoms of Rett Syndrome usually appear between 6 and 18 months of age and include loss of speech and hand skills, repetitive hand movements, breathing problems, and seizures. There is currently no cure for Rett Syndrome, but treatment can help manage symptoms and improve quality of life.

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Donate to the Research.
Donate to the Cause.

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UPCOMING EVENT: 2026

FUNDRAISING GOAL: $100,000.00!!

EVENT INFO
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